24-Hour Crisis Hotline: (877)SAFEGBC or (877)723-3422 Mental Health & Substance Abuse Issues

6502 Nursery Drive, Suite 100
Victoria, TX 77904
(361)575-0611
Fax: (361)578-5500
Regular Hours: M-Fri 8am - 5pm
Every 3rd Thurs of the Month - Extended Hours Until 7 pm

Child & Adolescent Development: Overview
Resources
Basic InformationMore InformationLatest News
Kids With Autism Can Really Benefit From ExerciseFDA Approves First New Children's ADHD Drug in 10 YearsWhy Are ER Wait Times Getting Longer for Kids in Mental Health Crisis?About 40,000 U.S. Children Have Lost a Parent to COVID-19Is Empathy Born in Mom's First Hugs?Adding in Stem Cell Therapy Helps Beat a Common Childhood LeukemiaWhat Will Summer Camp Look Like This Year?When Will America's Kids Get Their COVID Vaccines?1 in 4 Parents Won't Vaccinate Their Kids Against COVID-19: PollEven in a Pandemic, Child Vision Tests Are CrucialPfizer Says Its COVID Vaccine Is Very Effective in Kids as Young as 12Secondhand Smoke Is Sending Kids to the ERDrug Shows Promise Against Rare Condition That Stunts Kids' GrowthWhen Coal-Fired Power Plants Close, Kids With Asthma Breathe EasierAnother Study Finds COVID Doesn't Spread in Schools With Proper SafeguardsNearly Half of U.S. Schools Now Offer In-Person LearningLockdowns Gave Boost to Type 1 Diabetes Control in KidsWildfire Smoke Can Send Kids With Asthma to the ERPandemic Has Many Kids Struggling With Weight IssuesLab-Made Heart Valves Can Grow Along With Youngest Heart PatientsSome Kids With Type 1 Diabetes Face High Risk of Severe COVID-19Virtual Learning Has Taken a Toll on Kids' & Parents' Mental HealthCDC Says 3 Feet of Social Distancing Now OK in Most ClassroomsWhich Kids' Sports Have Higher Odds for Head Injury?Social Distancing Probably Stopped 2020 Outbreak of Paralyzing Disorder in KidsAHA News: What Parents Should Know About Rare But Scary COVID-19-Related IllnessSchool Dental Care Program Could Cut Cavities in Half: StudySocial Media, Binge Eating Often Go Together for KidsStressed and Distracted, Kids and Their Teachers Say Virtual Learning Isn't WorkingSports Position Doesn't Affect Risk of Concussion-Linked CTE IllnessPandemic Putting Added Strain on Parents of Kids With CancerDogs and Kids Are 'In Sync,' Study ShowsTeachers Main Drivers of School COVID Outbreaks, So Vaccinations Needed: StudyTips to Keep Young Athletes Injury-FreeMental Illness in Childhood Could Mean Worse Physical Health Decades LaterKids' Robust Immune Systems May Shield Them From COVID-19: StudyFertility Treatments Might Affect Kids' Growth, But Not for LongMom's Heart Health While Pregnant Could Influence Her Child's Health for YearsPandemic Has Affected Kids' Dental Health: PollNew Rabies Prevention Treatment Also Works in Kids: StudyWhen Will Kids Get the COVID Vaccines?U.S. Schools Can Reopen, With Safeguards in Place: CDCFetal Surgery Is Changing Lives for Kids With Spina BifidaKids Who Got Flu Shot Had Milder COVID Symptoms: StudyVery Little Spread of Coronavirus at Kids' Day Camps: StudyWhen Kids Misbehave, 'Verbal Reasoning' Can Sometimes BackfireVaccines Saved 37 Million Lives, Mostly Children, Over Past Two DecadesAnchor It! Toppling TVs, Furniture Can Injure and Kill KidsWhy Do Black Children Get Fewer Scans When They're Seen in ERs?Pandemic May Be Affecting How Parents Feed Their Kids
Questions and AnswersLinks
Related Topics

ADHD: Attention Deficit Hyperactivity Disorder
Childhood Mental Disorders and Illnesses
Child Development & Parenting: Infants (0-2)
Child Development & Parenting: Early (3-7)

Too Many Kids With Special Needs Are Going Without Adequate Support

HealthDay News
by By Denise Mann HealthDay Reporter
Updated: Jan 28th 2021

new article illustration

THURSDAY, Jan. 28, 2021 (HealthDay News) -- As many as one in five U.S. children has special health care needs, and some of their caregivers are struggling to get them the support, care and services they need, new research shows.

Kids with special health care needs may have physical conditions (such as asthma or diabetes), mental health issues (including attention-deficit/hyperactivity disorder or anxiety), developmental disorders (like autism or Down syndrome), or a combination of these conditions.

These kids often require additional health care and support. Right now, those who receive such care are likely to get it through the "medical home" model, new research shows. In such a model, a pediatrician serves as quarterback and coordinates care with specialists and other providers.

Children who did not receive consistent care in a medical home model were less likely to receive preventive services, easily access community services, and their caregivers were more likely to report unmet health care needs and unmet family support needs, the study found.

The findings are based on interviews with more than 32,000 caregivers of special needs kids who took part in the 2009/2010 National Survey of Children with Special Health Care Needs. Of these, 43% said their child was receiving care through a medical home model. The study was published online recently in the journal Children's Health Care.

Medical homes are the gold standard for these kids, but even this model is not 'one-size-fits-all,' the study authors found.

"Medical home-consistent care does not seem to be enough to guarantee positive outcomes for families dealing with more complex conditions, who have lower incomes, and whose children were uninsured or inconsistently insured through the year," noted study author Rebecca Wells. She is a clinical assistant professor at University of Georgia's College of Public Health and School of Social Work, in Athens, Ga.

Another big factor in care is where in America kids live, Wells said. A family of a child with autism and severe symptoms may really struggle in a rural county, for example. "They may need special therapies, support groups, or respite that is just not available in their area," she explained.

More is needed to make sure these kids and their families get the care and services they need as efficiently as possible, Wells said.

This starts with making sure all children are insured and remain that way. "We have private insurance, Medicaid and the State Children's Health Insurance Program in our country, yet children still can fall through the cracks if a caregiver loses a job or even if there is a paperwork error, or the caregiver gets confused about re-certifying the child's eligibility for state-sponsored health coverage," Wells explained.

Increased funding to train health professionals who want to work with children with special health care needs, and incentives to work in underserved areas may help shore up some of these gaps, she suggested.

Experts not involved in the new study agreed that the medical home model is the way forward.

"Each child [needs] a relationship with a personal physician and a practice-based care team that takes collective responsibility for the patient's ongoing care -- ensuring that it is coordinated across care settings and disciplines," said Dr. Andrew Adesman. He is chief of developmental and behavioral pediatrics at Cohen Children's Medical Center in New Hyde Park, N.Y. Such care is especially important for children with greater or more complex health care needs.

"The medical home model actually reduces health care costs by reducing hospital and emergency department visits," Adesman said.

Dr. Nicola Brodie, a pediatrician at Children's National Hospital in Washington, D.C., noted that "children who have added medical complications need a system in place for one-stop shopping to access all of these services. The medical home model should be the standard of care for all children."

More information

The U.S. Social Security Administration offers information on insurance benefits for children with special health care needs and disabilities.

SOURCES: Rebecca Wells, MPH, PhD, clinical assistant professor, College of Public Health and School of Social Work, University of Georgia, Athens; Andrew Adesman, MD, chief, developmental and behavioral pediatrics, Cohen Children's Medical Center, New Hyde Park, N.Y.; Nicola Brodie, MD, pediatrician, Children's National Hospital, Washington, D.C.; Children's Health Care, Nov. 28, 2020, online